Who we are
Cystic Fibrosis Trust is the charity uniting people to stop cystic fibrosis (CF). We fund vital research, improve care, speak out and race towards effective treatments for all. We won’t stop until everyone with cystic fibrosis can live without limits.
Multiple positions available
Flexible and remote role
Voluntary role unpaid
Cystic Fibrosis Trust is the UK’s leading charity dedicated to uniting for a life unlimited for everyone with cystic fibrosis (CF) – one of the most common life-limiting genetic conditions. Our volunteers, Trustees and staff work with people affected by the condition to champion the cause and improve the lives of people with CF.
The Trust funds cutting edge research and provides confidential advice, support, and information on any aspect of cystic fibrosis, including help with financial support. Our work relies on the generous donations of our supporters.
We are looking for new people with the following professional experience to join our Board:
- health data collection and analysis
- clinical experience as a part of the CF Multi-Disciplinary Care Team
- marketing and communication
- technology and digital transformation
- finance and accounting
The cystic fibrosis community includes people from all backgrounds, and we are keen ensure that diversity is reflected on our Board. We welcome and are particularly interested in hearing from those with lived experience of CF, disabled people, Black, Asian and minority ethnic and LGBTQI candidates.
About the role
As a member of the Board of Trustees, you will have specific statutory duties, such as ensuring that we comply with charity and company law and that we use our resources responsibly to achieve our aims. Trustees serve for three years with the option of a second term.
Our community and staff are spread across the four nations of the UK, and we are keen to reflect that diversity on our Board. We have an office in central London with virtual meeting spaces and board members can attend all meetings in person or virtually.
This is a voluntary role that is unpaid, but you can claim reasonable expenses, such as travel to attend meetings in person.
If you think you can help us work towards a future free from the limits of cystic fibrosis please download the Trustee Application Pack for more information and the full role description.
To apply, send your CV and a covering letter explaining why you want to be a Trustee, what skills you can bring to the Board of Trustees and what you want to take away from this opportunity
Please send your application to: [email protected]
- Closing date for applications: Friday 30 June 2023, 9am
- First interviews expected: week commencing 17 July 2023
- Second interviews expected: week commencing 24 July 2023
- trustee-application-pack-v-june-0-.pdf - Download