1. Muscle Help Foundation

Chair of Trustees for Small UK Muscular Dystrophy Family Charity

Hybrid / South East

The Muscle Help Foundation charity is looking for a Chair of Trustees who is passionate about the cause but also keen to get involved and help drive the charity’s strategic direction. The Chair will work closely with trustees and the charity’s founder and CEO.

Closing date for applications

Who we are

Small multi award-winning family-centred charity uniquely tackling the isolating and debilitating muscle wasting disease Muscular Dystrophy (MD) for children and young people. Our vision is a world of hope, purpose, inspiration and empowerment for all children with MD. We deliver highly personalised interventions (in-person & virtual) in the UK called Muscle Dreams that provide powerful physiological and psychological benefits from improving emotional and mental wellness to boosting confidence.

The role

The Muscle Help Foundation charity is looking for a Chair of Trustees who is passionate about our cause but also keen to get involved and help drive the charity’s strategic direction. The Chair will work closely with trustees and the charity’s founder and CEO.

Experience and charity governance…

As MHF moves into its 21st Anniversary year and closer to realising its 657 mission, we have an exciting opportunity for someone to bring their leadership and communication skills to the fore. Previous trustee experience and charity governance are essential.

Main duties for MHF’s Chair

You will work closely with the charity’s founder and CEO but also you will lead the trustees in strategy, good governance, and policy development. As part of this engagement, the Chair will provide support to the CEO, including supporting his wellbeing and ongoing professional development.

Other duties will include:

  • When necessary, ensure the Chair and Trustees challenge the CEO constructively and only in the best interests of the charity as ‘critical friends’.
  • Liaising with the Charity Secretary, and the CEO with drafting agendas and supporting papers for Trustee meetings, ensuring provision of timely information and sharing with all.
  • Ensure charity business is covered efficiently and effectively in meetings.
  • Undertake a leadership role to ensure that board members fulfil their governance responsibilities and that trustee decisions are acted upon.
  • Maintain trustees’ commitment to board renewal, succession planning and trustee performance reviews, in line with MHF’s governing document.
  • Ensure board and trustee performance is reviewed annually.
  • Ensure the performance of the CEO is reviewed annually.

The Chair will also ensure that Trustees make an effective contribution and are engaged, fully involved and invested in the charity in discharging their responsibilities. Additionally, the role of the Chair will be to:

  • Ensure that whenever practicable, Trustees commit to attending some of MHF’s Muscle Dream programmes, providing opportunities to not only meet the CEO but also the charity’s beneficiaries, their families, and the incredible volunteers that support MHF’s ongoing work.
  • To ensure that major risks to which the charity is exposed are reviewed regularly, as required, and systems are established to mitigate these risks.
  • Working with the CEO, the Chair will develop policy proposals wherever appropriate for Board discussion and decision.
  • The Chair will support and promote MHF’s fundraising objectives wherever possible e.g. through networking with potential funders and/or attendance at any fundraising events.

Chair skills, qualities, and experience

MHF is looking for a Chair who not only has experience of being a charity trustee or someone who has held a senior management role, but also an individual who has a keen sense of strategic purpose, underpinned by an inclusive and compassionate style of leadership.

  • Ability to inspire and support everyone to participate on an equal footing.
  • Ability to maintain confidences and a relationship of trust with the CEO.
  • Ability to foster a collaborative board environment.
  • Advocate MHF’s work through personal networks and other channels.
  • Being responsive – as a small charity, things sometimes ‘come up’ that require the Chair to advise, support or authorise. MHF is seeking a Chair that’s available and responsive.
  • Understanding of the context in which MHF works and a commitment to its values, which adds to public confidence and trust in the charity.
  • Understanding of commercial and non-commercial issues.
  • Intellectual capacity to grasp issues outside personal experience.
  • Ability to think creatively and strategically.
  • Strong communication, listening and interpersonal skills.
  • Professional or relevant business-related experience and knowledge and/or the ability to demonstrate the necessary skills needed to support MHF’s professional interests.
  • Passion, enthusiasm, and time to dedicate to the role of Chair of Trustees.

What time commitment are we looking for?

  • The time commitment required to fulfil the Chair role will be somewhere between 2-3 days per month
  • MHF’s Trustee Board meets once every 2 months, for 2 hours, within the financial year (1st Mar – 29th Feb)
  • The Chair & trustees are encouraged to attend and engage with one Muscle Dream programme per year
  • The Chair will conduct an annual review meeting with each trustee, outside of any other trustee meetings
  • The Association of Chairs (AoC) are an independent association of Chairs of social purpose and not-for-profits – formed in order to help Chairs with their unique task to lead the board in delivering the organisation’s aims – the AoC offer some excellent resources including Chair Training (if required)

Diversity, equality, and inclusion

One of our strengths as a board is its diversity. And as a charity, our community’s diversity. We are interested in hearing from applicants with diverse skills and experiences that reflect the diversity of our beneficiaries.


We are open to applications from those with relevant senior level charity experience. We would love to hear from people with experience of income generation, small charity or small business leadership experience as well as experience of governance in a small charity.

MHF’s recruitment process is open and inclusive. Applicants will be communicated with in advance, so they know what to expect as the process unfolds.

Why not reach out, say hello and let’s have an informal chat – contact the charity’s founder and CEO by emailing michael@musclehelp.com – alternatively, feel free to get in touch with us so a mutually agreeable time can be arranged to discuss your interest with our current interim Chair, Vice Chair or one of our Trustees.

If you would like to progress your interest forwards, in the first instance, please upload your CV together with a covering letter outlining your skills, experience and motivations. We can also send you an application pack. Please be sure you let us know how we may be able to support you through the application and recruitment process. We look forward to hearing from you.

Safer Recruitment Statement

The charity is committed to safeguarding and ensuring the welfare of children, young people and vulnerable adults. The charity expects all Trustees, employees and volunteers to share this commitment. The suitability of all prospective Trustees, employees or volunteers will be assessed during the recruitment process accordingly.

Purity of Impact – Our Raison d’Etre

To discover more about our work, take a moment by clicking here to learn more about the purity of our impact.

Supporting document(s)

  • chair-charity-background-info-pack-2024.pdf - Download
Closing date for applications

Our commitment to diversity & inclusion

Trustees Unlimited believes that diverse boards strengthen society. We will strive to remove the barriers that prevent people from applying to become trustees and help our clients to recruit and support people with a wide range of skills and lived experience.

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