Who we are
PSP|CBD are degenerative neurological conditions caused by the progressive death of nerve cells in the brain, that impact speech, swallowing, movement, sight, & cognition. PSPA are a national charity providing expert support & information to people living with these conditions, their families & Health and Social Care Professionals. We fund research into the causes and treatments of the disease and raise awareness to improve diagnosis.
Help us create a better future for everyone affected by PSP & CBD.
PSP & CBD are degenerative neurological conditions caused by the progressive death of nerve cells in the brain, that impact speech, swallowing, movement, sight, and cognition. There is no treatment to reduce the progression of the disease and no national standards of care on getting a diagnosis.
Approximately 4,000 people in the UK currently live with a diagnosis of PSP or CBD. Research in 2019 estimated that as many as 10,000 people are living with either disease. The gap in diagnosis rates to estimated rates demonstrates the scale of the challenge for PSPA to raise awareness for improved diagnosis, care, and a better quality of life.
We are a national charity providing expert support and information to people living with these conditions, their families and Health and Social Care Professionals. We fund research into the causes and treatments of the disease and raise awareness to improve diagnosis.
We are looking for two new Trustees; one with experience working in the health sector who can help us to implement our strategy in relation to influencing Health and Social Care policy and professionals. And one with experience in awareness raising and campaigning who will contribute to our goal of raising awareness to improve diagnosis rates and the quality of care.
This is an opportunity for someone looking for professional development and wishing to help shape the future of a national charity and make a real difference in people’s lives.
- Is an unpaid role – out-of-pocket reasonable expenses will be covered
- You must be able to commit to around 6 days per year (4 Board meetings (half a day), 2 in Milton Keynes, 2 held virtually and usually 2 other meetings for sub-committees and some other ad hoc time.
We welcome applications from all ages and backgrounds. Whether you are an experienced Trustee or want to take your first step at the Board level, we would love to hear from you.
- You can download a full role description here.
- If you would like to apply, please send your CV and a cover letter outlining why you are interested in the role and what your skills and experience will bring to the role to [email protected]
For an informal contact our CEO, Rebecca Packwood, at the email address above.
The deadline for applications is 30th September 2023.
- trustee-jd-0-.pdf - Download