1. The CGD Society



We are seeking new trustees who want to make a difference to join our friendly and ambitious board of trustees.

Closing date for applications

Who we are

The Chronic Granulomatous Disorder Society (CGD Society) is based in the UK and was originally registered as a charity in 1991 under the name The Chronic Granulomatous Disorder Research Trust. Over the years, the charity has transformed from a small parent support group into a leading global source of information and support for Chronic Granulomatous Disorder (sometimes referred to as Chronic Granulomatous Disease).

The role

Being a Trustee for the CGD Society means you will use your skills and experience to support our charity, ensure we are achieving our aims, goals and mission. All Trustees are jointly responsible for any decisions made as well as defining and overseeing our strategy.

You will work closely with our dedicated staff to ensure the organisation operates effectively, efficiently and economically, with a culture that is positive, and focused on the needs of those it serves.

As well as attending Board meetings, Trustees are encouraged to join a subcommittee and use their skills to assist our staff and maximise effort in a specific area. Our current subcommittees cover Governance, Finance, Fundraising, Community and Medical.

About You

We are seeking individuals who are collaborative, self-motivated and passionate about work that makes a difference. Those seeking a new challenge and enjoy innovative problem-solving will flourish in this role.

Whilst we welcome applications from anyone, regardless of experience, we have identified some specific skills gaps that would be beneficial for the charity to fill. These are listed below. Given the nature of our work, we also encourage applications from individuals affected by CGD or another rare disease, however, this is not a requirement. We remain committed to providing equal opportunities and are keen to diversify our Board in terms of age, race, gender and religion.

  • Lived experience with CGD.
  • Legal expertise, preferably within a charitable context, to provide essential guidance.
  • Fundraising proficiency, including successful grant application and grant writing abilities, to enhance income diversification.
  • Proficiency in Information Technology, digital platforms, and digital marketing
  • Representation from the healthcare sector to enrich our understanding of healthcare delivery in the UK.
  • Brand development skills to maximize the utilization of our assets.

Supporting document(s)

  • cgd-society_trustee-recruitment-pack_may-24-1-.pdf - Download
Closing date for applications

Our commitment to diversity & inclusion

Trustees Unlimited believes that diverse boards strengthen society. We will strive to remove the barriers that prevent people from applying to become trustees and help our clients to recruit and support people with a wide range of skills and lived experience.

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