Trustee: Fundraising

?Help guide a rare disease charity through its next chapter

As a small
but passionate UK-based charity, we are seeking a Trustee with a background in
fundraising to help us build sustainable income streams. With no current
UK-based staff and limited resources, your expertise will be instrumental in
helping us grow our fundraising capacity and secure vital funding for research,
family support, and advocacy.

In this
role, your responsibilities could include:

• Leading
  the development and implementation of a fundraising strategy

• Identifying
  and pursuing grant opportunities, corporate partnerships, and individual giving
  campaigns

• Supporting
  the creation of compelling fundraising materials and donor communications

• Ensuring
  compliance with relevant fundraising regulations and best practices

What We’re Looking For

We are
particularly interested in individuals with experience in:

• Charity
  fundraising (individual giving, trusts and foundations, corporate sponsorships)

• Grant
  writing and bid development

• Strategic
  planning and income generation

• Building
  donor relationships and stewardship

• The
  UK charity sector, including knowledge of fundraising regulations

Soft
skills we value include:

• The
  ability to evaluate diverse viewpoints?

• The
  willingness and flexibility to support the Board with a range of tasks

• Adaptability
  to shifting priorities and deadlines

We particularly
welcome applications from individuals with lived experience of rare diseases.
However, this isn’t essential.

Why Join Us?

• “The charity gives me hope and comfort that
  someone is working tirelessly to help find a cure for our children.”- Dan,
  parent of a six-year-old diagnosed with SLC6A1

• “The charity gives me hope and comfort that
  someone is working tirelessly to help find a cure for our children.” – Helen, parent of an
  individual diagnosed with SLC6A1 at the age of 30

• “Volunteering
  with SLC6A1 Connect UK has given me a sense of purpose and belonging during a journey
  that can often feel isolating. Being part of this community means connecting
  with others who truly understand, sharing hope, supporting vital research, and
  working together to create a better future for our children.”

You’ll be joining a
charity that is:

• Led by lived experience
• Focused on impact and innovation
• Ready to grow with your guidance

What We Offer

• The
  opportunity to shape the future of a rare disease charity

• The
  chance to develop a fundraising strategy from scratch

• The
  platform to advocate nationally and build networks

• The
  possibility to use your skills for good

FAQs

• “I
  don’t think I have enough time.”
  We estimate around 4-6 hours per month, including quarterly board
  meetings and one strategy day per year.

• “I’ve
  never been a trustee before.”
  We welcome all backgrounds and provide support to help you succeed.

How to Apply

Send your CV and a short cover letter to Lindsay
Randall (lindsay.randall@slc6a1connectuk-aq.org)
by Wednesday 5th November. If you have any questions about
this position, please reach out to Lindsay.